by Kadyn's Krew
March 31, 2014 at 12:34AM
Monday, March 31, 2014
FISH FOR A CURE! Ozarks Charity Fishing Tournament May 3, 2014 at Mill Creek - Table Rock Lake benefiting The Cystic Fibrosis Foundation via Kadyn's Krew. CF is a devastating disease that impacts 30,000 people in the US...70,000 worldwide. We will not stop fighting until a cure is found! As always, ALL money raised by Kadyn's Krew goes directly to The Cystic Fibrosis Foundation.
by Kadyn's Krew
March 31, 2014 at 12:34AM
Wednesday, March 19, 2014
March 19, 2014
Totally worn out tonight and all I wanted was to be done with responsibilities, CF related and otherwise. Then, this, one of my favorite things in the world happened...
It makes the treatment a bit more difficult, but there is nothing better than having Koy climb under the tubing and onto my lap to snuggle up to his sister.
#twincuddlestrumpsleep
It makes the treatment a bit more difficult, but there is nothing better than having Koy climb under the tubing and onto my lap to snuggle up to his sister.
#twincuddlestrumpsleep
Wednesday, March 12, 2014
March 12, 2014
Great clinic appointment, PICC line out, grabbed BFF, now heading back to the lake to celebrate with the boys and gamma! As Kadyn put it..."Best day EVER!!!"
#thankful #godisgood
#thankful #godisgood
Thursday, March 6, 2014
March 6, 2014
"This is the way God made me?"
As much as I want to cry and say yes and it sucks! You've been dealt a pretty sh!-/ hand and I'm so so sorry! I can't...
And, believe me, if you looked into those beautiful brown eyes full of life, spunk, grit, love and determination you wouldn't be able to either.
So simply...
Yes, my sweet girl, you are fearfully and wonderfully made.
God made you and you are perfect. He gave you that smile that shines brighter than any I've ever seen. Determination to persevere, to laugh and carry on when most would quit. Grit that can be so frustrating yet so encouraging because I know you will never stop fighting. Love that is so deep and pure it can change the world.
You are an old soul my sweet warrior. You're a fighter and if discouraged, you fight longer and harder. I admire you. I love you. You make me, daddy, and Koy better people because of your example. We will never stop fighting alongside you. We will win.
We have to win.
As much as I want to cry and say yes and it sucks! You've been dealt a pretty sh!-/ hand and I'm so so sorry! I can't...
And, believe me, if you looked into those beautiful brown eyes full of life, spunk, grit, love and determination you wouldn't be able to either.
So simply...
Yes, my sweet girl, you are fearfully and wonderfully made.
God made you and you are perfect. He gave you that smile that shines brighter than any I've ever seen. Determination to persevere, to laugh and carry on when most would quit. Grit that can be so frustrating yet so encouraging because I know you will never stop fighting. Love that is so deep and pure it can change the world.
You are an old soul my sweet warrior. You're a fighter and if discouraged, you fight longer and harder. I admire you. I love you. You make me, daddy, and Koy better people because of your example. We will never stop fighting alongside you. We will win.
We have to win.
Wednesday, March 5, 2014
Monday, March 3, 2014
March 3, 2014
Enlisted big brother to help fight these germ bugs Going home today on IV meds until the end of next week treating her Staph A. Yesterday's X-ray looked a little worse but apparently that can happen after a bronch. Still coughing and exhausted but Dr Ner says it may take at least a couple weeks after the bronch to feel really good. She should be improved some by the weekend. Touching base w/ doctor on Friday and scheduled to see them in clinic in Spfd next Wednesday.
Sad that she still isn't feeling great but so happy to be going home! Praying for a big turn around this week. #Godisgood #weneedacure #twinblessings
Sad that she still isn't feeling great but so happy to be going home! Praying for a big turn around this week. #Godisgood #weneedacure #twinblessings
Saturday, March 1, 2014
March 1, 2014
Yesterday was a good day...
Still waiting for culture results, virus panel came back negative
Kadyn also visited with some pretty awesome people . She is tired, but doing everything possible to get better. #alwayssmiling
While Kadyn's been kicking germ bug butt, Koy has been getting his butt kicked by the stomach flu. Nothing worse than being far away when your boy is sick. Thankfully, he is with Ryan and feeling better. We hope to see them tonight or tomorrow. #halfofawhole
We had so much fun and were so sad to see Meme go yesterday.#bestofthebest #droppedeverythingandcame
Gamma and Uncle are coming to visit today so I know we are in for another good day!
Still waiting for culture results, virus panel came back negative
Kadyn also visited with some pretty awesome people . She is tired, but doing everything possible to get better. #alwayssmiling
While Kadyn's been kicking germ bug butt, Koy has been getting his butt kicked by the stomach flu. Nothing worse than being far away when your boy is sick. Thankfully, he is with Ryan and feeling better. We hope to see them tonight or tomorrow. #halfofawhole
We had so much fun and were so sad to see Meme go yesterday.#bestofthebest #droppedeverythingandcame
Gamma and Uncle are coming to visit today so I know we are in for another good day!
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