Kadyn started with a few dry coughs over a week ago that have continued to progress. No cold or congestion...just a cough. Upped her treatments to 4 a day on Friday (Vest + meds 2x a day and IPV + meds 2x). Started a strong antibiotic on Monday but haven't seen much improvement. Now, adding manual CPT after each treatment. We are doing everything we can and will continue to do so while praying she can kick whatever this may be. Kadyn has been so compliant and willing to do everything asked of her. She has gone through so much and is still consistently positive. Again, I am in awe of her.
I hate CF!
When we raise money for Cystic Fibrosis we may do so under the name of Kadyn's Krew, but we are raising money and awareness for every single person impacted by this disease. We realized early on that sharing Kadyn's story was one of the best ways to educate people about CF and raise awareness.
Unfortunately, Cystic Fibrosis has never lain dormant in Kadyn. She has been fighting for her life since the day she was born. CF has never taken a day off. It has invaded and tried to take over her little body too many times to count in her short 4 1/2 years.
I HATE CYSTIC FIBROSIS! I hate that its primary purpose is to shut down my spunky, brown-eyed, scraggly haired, smiley, baby girl.
We fight CF every second of every day. We pound, shake, blow, neb, inhale, exhale every possible thing we can to rid Kadyn's body of the sticky mucus CF creates. We raise awareness and funds so that one day a cure will be found, and instead of worrying about dirt, water, germs, coughs, doctor appointments, hospital visits, bacterias, planning treatments, packing in calories, scheduling our day in 4 hour increments, downing dozens of pills, Kadyn will only have to think about playing with her brother/cousins/friends, birthday parties, swimming pools, jumping in lakes, riding bikes and playing as long and as hard as she wants until bedtime. No more pills, treatments, clean outs, hospitals, NG tubes and IVs.
We need a cure for Cystic Fibrosis so one day Kadyn and so many others can stop fighting and just enjoy living their lives.
I hate CF!
When we raise money for Cystic Fibrosis we may do so under the name of Kadyn's Krew, but we are raising money and awareness for every single person impacted by this disease. We realized early on that sharing Kadyn's story was one of the best ways to educate people about CF and raise awareness.
Unfortunately, Cystic Fibrosis has never lain dormant in Kadyn. She has been fighting for her life since the day she was born. CF has never taken a day off. It has invaded and tried to take over her little body too many times to count in her short 4 1/2 years.
I HATE CYSTIC FIBROSIS! I hate that its primary purpose is to shut down my spunky, brown-eyed, scraggly haired, smiley, baby girl.
We fight CF every second of every day. We pound, shake, blow, neb, inhale, exhale every possible thing we can to rid Kadyn's body of the sticky mucus CF creates. We raise awareness and funds so that one day a cure will be found, and instead of worrying about dirt, water, germs, coughs, doctor appointments, hospital visits, bacterias, planning treatments, packing in calories, scheduling our day in 4 hour increments, downing dozens of pills, Kadyn will only have to think about playing with her brother/cousins/friends, birthday parties, swimming pools, jumping in lakes, riding bikes and playing as long and as hard as she wants until bedtime. No more pills, treatments, clean outs, hospitals, NG tubes and IVs.
We need a cure for Cystic Fibrosis so one day Kadyn and so many others can stop fighting and just enjoy living their lives.
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