Wednesday, May 8, 2013

Update


Update:

I apologize I have not done a very good job updating lately. Mostly, because there has not been much to report.

Kadyn -
As always, Kadyn keeps a smile on her face through it all. She wears her princess dresses with headbands and a positive attitude everyday! She started having some retracting and labored breathing (again) a couple days ago. This makes her pretty tired... instead of running 10 races in the room she runs 2, instead of dancing to 3 songs in a row 1 seems to tire her out. Not sure what this is all about but we are keeping our eye on it.

Kadyn's culture -
She cultured human metapneumovirus this is a virus very similar to RSV. Finding a virus is actually a good thing because we know the reason she got so sick so fast.
Kadyn is not culturing any new bacteria (just her normal staph A). This is wonderful news!

Treatment -
Still on IV antibiotics, breathing and vest treatments 4x/day, and
due to the compressed bronchial tube (airway) we added a new treatment called Ez Pap. We stop her vest 3 times (every 10 min). Then, Kadyn blows against air resistance 10 times and coughs against air resistance a few times.
This is to help open the compressed airway so mucus can move up and out. We will be doing this at home too.

X-ray -
Kadyn had an x-ray today. We have not talked to Kadyn's doctor about it yet. However, the report didn't show much change from a week ago. It also stated mild to moderate hyperinflation...I believe this just means she still has trapped air in her lungs. But, we will know more what it "really means" when we hear from the dr.

Home?
Praying for soon!!!!!

We really miss being together as a family. For some reason this stay has been harder on me than the last few. I don't know if it's the fact that we have been in the hospital 42 days in 4.5 months, that my little girl is 4 and continues to endure so much discomfort and pain on a daily basis and I cannot help her, or because I am actually seeing how devastating Cystic Fibrosis can be.
After writing this, I think it's safe to say it's probably the combination...

I've said it many times before... God gave Kadyn a little extra "something" when He made her. Her spirit and smile are contagious. You cannot help to laugh or at least smile when she is around. She knows no other way to live and she makes the most out of every single second.

We feel so blessed to have such incredible prayer and support warriors in our Krew. Thank you and we love you all!


And we know that in all things God works for the good of those who love him, who have been called according to his purpose. - Romans 8:28

And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus. - Philippians 4:7

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