"
Good News! Yesterday, we got an "acceptance" letter to Nationwide Children's Hospital in Columbus, Ohio. This means that Kadyn will be seen by a motility expert! We have been praying for something like this for a very long time! We do not have a date yet, but they said they will be contacting us very soon.
From good news to today' s news...
Kadyn had labs and an x-ray this morning. Her liver enzymes have increased again and her x-ray showed that she is very very full again. She is back on a liquid diet and we are going to do everything we can (12-15 caps of Miralax daily) to avoid another NG tube. There is no real explanation for any of this, or none that we can find so far. It is like her stomach and intestines have just stopped working all together. I thought we might be coming home this weekend, but it doesn't look like that anymore.
We continue to trust in God and give thanks that Kadyn's spirit has remained positive and strong. She is happy and doing her best to understand all we have to do to get her healthy. I say it all the time but I swear God gave her some of the most amazing gifts when He made her. Kadyn teaches us something new everyday. I am so proud of her and feel incredibly blessed that God chose me to be her mommy.
I have to thank all of you as well! The cards, calls, texts, balloons, flowers, gifts, prayers and love are so appreciated! We love you and know we could not do what we do without all of you standing with us and cheering us on! THANK YOU!!
"
From good news to today' s news...
Kadyn had labs and an x-ray this morning. Her liver enzymes have increased again and her x-ray showed that she is very very full again. She is back on a liquid diet and we are going to do everything we can (12-15 caps of Miralax daily) to avoid another NG tube. There is no real explanation for any of this, or none that we can find so far. It is like her stomach and intestines have just stopped working all together. I thought we might be coming home this weekend, but it doesn't look like that anymore.
We continue to trust in God and give thanks that Kadyn's spirit has remained positive and strong. She is happy and doing her best to understand all we have to do to get her healthy. I say it all the time but I swear God gave her some of the most amazing gifts when He made her. Kadyn teaches us something new everyday. I am so proud of her and feel incredibly blessed that God chose me to be her mommy.
I have to thank all of you as well! The cards, calls, texts, balloons, flowers, gifts, prayers and love are so appreciated! We love you and know we could not do what we do without all of you standing with us and cheering us on! THANK YOU!!
No comments:
Post a Comment